This workshop was held in 2009 during the Council launch. A report of this workshop is published in the Journal of Participatory Medicine, by Cristiano Storni. Here you can find a series of slide framing the workshop themes. Here below a conceptual map aimed to provide an open conceptual space to be explored during the workshop. Here some further inspirational material distributed to workshop's participants (food for thoughts) =================== Original call and workshop description HC systems in western countries are currently undergoing deep changes in the organization and management of health care services and patient treatments. Aging population and a concerning increase of chronic diseases combine with the development of new treatments and the rising demand of them. The shadow of a coming shortage of human resources and endlessly increasing costs ask for rethinking the systems to minimize hospitalizations, efficiently allocate specialized personnel, and reduce costs. In this rather dark scenario the notion of patient empowerment, patient choice and self-care generate understandable enthusiasm and become phenomena of increasing importance along with the spread of self-monitoring networked devices, ubiquitous sensors, HC e-infrastructures and social networks. However the migration of technology and information from hospitals and expert practitioners to domestic spaces and lay patients may come at the price of a renegotiation of the relationship between the different perspectives in play. What is the role of the IOT in this changing scenario? Will it reproduce a disease centric model based on more sophisticated forms of epidemiological control and dominance of biomedical perspectives, or rather will it open up new forms of patient centric collaborations between lay and experts based on the co-construction of care? In many cases the problem to be faced is well known and the role of IOT might be that of supporting compliance and the work of experts (even if it might limit the active participation of patients). In many other cases we are confronted with different degrees of uncertainties and the IOT should not miss the opportunity to make room for open ended dialogues that take advantage of the full partecipation of different ways to experience the disease. Workshop This workshop aim to gather different perspectives and expertise to envision future HC scenario by bringing together practitioners from across disciplines. Participants in the workshop will be invited to explore together possible worlds and how they might be constituted by addressing the role of the Internet of Things in the changing Health care scenario. The general aim is to understand together how the internet of things can shape future patients and HC stakeholders and how they can shape the internet of things. Participant will be invited to discuss scenario and to collaborate in practical design activities aimed to address issues for the future of medical products, services and infrastructures. The outcome of this workshop will be the identification of challenges and suggestions for designers and policy makers. Possible question that can be addressed in the workshop:
- How to support compliance in complex treatments (when compliance is the problem, e.g. acute diseases and well-established treatments)?,
- How to support 'research in the wild' where patients become active actors in the exploration of new solutions (when things are more complicated as, for instance, in chronic disease, experimental treatments, etc...)?
- How to design instrument to allow experts to better relate to patients; concerns and to allow patients to better relate to the expert perspective?,
- How to give meaning and voice to the patient's experience of illness, and how to generate collective learning around it?
- How to inscribe the medical and the social together in the Internet of Things? how to inscribe solidarity and social learning in the future of Health Care?